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Canadian singer Celine Dion has announced that she is suffering from an incurable neurological disease, which has kept her off stage and caused her mobility problems.
In an emotional video posted on her Instagram account, the interpreter explains that the doctors have diagnosed her “stiff person syndrome”a rare autoimmune disease that affects the nervous system, which she says affects “one in a million people.”
“As you know, I’ve always been an open book, and I wasn’t ready to say anything, but I am now,” says Dion, fighting back tears.
The interpreter of “My heart will live onHe explains that he has had health problems for some time and that it has been very difficult for him to face this challenge or talk about the difficulties he is going through.
“While we are still learning about this rare disease, we now know what caused the spasms I’ve had,” the 54-year-old singer confesses.
These spasms, he explains, “affect all aspects of my daily life, sometimes making it difficult for me to walk.” Syndrome It also affects your vocal cords.“don’t make me use them like I used to.”
In the video, which was shot in English and French, The interpreter addresses her followers with emotion and affection, whom she says she “misses very much”, and who she hopes to see again in person and on stage soon.
However, Dion also announces that the tour that would start in 2023 and which would take her through a multitude of European countries will have to wait. The information accompanying the video ensures that the shows will be moved to 2024.
“I have a great team of doctors working with me to help me recover,” says the interpreter of “Let’s talk about love“, who also has words for his “beloved children, who support me and give me hope.”
Celine Dion had three children with her husband and former music manager René Angelil, who died of throat cancer in 2016.
A disease that affects one in a million
The “stiff person syndrome” is characterized by a fluctuating muscle stiffness in the trunk and extremitiesand increased sensitivity to stimuli such as noise, touch, and emotional distress, which can cause muscle spasms, as defined by the US National Institute of Neurological Disorders and Stroke.
People suffering from this condition, who It affects twice as many women as men.they may have difficulty walking or moving around, and often avoid leaving the house because street noises can cause spasms and falls.
Scientists still don’t understand what causes this syndrome, although it has been linked to other autoimmune diseases such as diabetes, thyroiditis, vitiligo and pernicious anemia, according to the American Institute.
The disease is so rare that it is often misdiagnosed as Parkinson’s disease, multiple sclerosis, fibromyalgia, psychosomatic illness, or anxiety and phobia.
Although it is a disease that currently has no cureCan medications such as muscle relaxants improve symptoms.
In the video, Celine Dion explains that “I’m working hard with my sports medicine therapist to get my strength and performance back,” though she acknowledges it’s a real “test.”
“All I can do is sing. That’s what I’ve been doing all my life. And that’s what I love to do,” she says in a cracking voice.
Dion, the youngest of a family of 14 brothers Originally from the French-speaking Canadian province of Quebec, she started singing as a teenager.
Her musical career spans more than four decades, making her the queen of the romantic ballad.
Although most of his international hits, such as the main theme of the movie soundtrack “titanic“, which won the 1997 Oscar for best original song, are sung in English, Dion she is the best-selling francophone artist of all time.
In the video posted to Instagram, Dion gets emotional as she addresses her followers.
“I miss you so much. I miss you all, being on stage, for your performance,” confesses the singer, who had to cancel a tour in North America in January of this year.
Right now, he says, “I need to focus on my health and I’m hopeful that I’m on the road to recovery.”
“I hope to see them very soon,” he concludes.
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